nice to meet you!

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“Exam Table Hospital Glam” University of Chicago Hospital. March 2017. 

Hello!

In case you don’t already know who I am (aka have come from Instagram, Tumblr, or Twitter) it’s very nice to meet you! My name is Sof. I’m almost 20 years old, I’m an arts student, a cat lover, a fan of almost any kind of music, a skin care aficionado–and oh yeah! I am chronically ill.

I was diagnosed in 2015 at the age of 17 (almost 18) with severe Crohn’s Disease. In case you don’t know what Crohn’s Disease is (& many people don’t–even though it affects as many as 1.6 million Americans, according to the Crohn’s and Colitis Foundation of America) it is an inflammatory autoimmune disease that affects your gastric path–basically your whole digestive tract. The symptoms and severity vary. Mine is pretty severe. Some of my symptoms include internal bleeding, chronic pain, nausea, inflammatory arthritis (because of all the inflammation in my body) a struggle to gain weight, & difficulty absorbing nutrients, just to name a few.

My disease was something I was very ashamed of for a long, long time. It has taken me two years to come to terms with the fact that I will be sick for the rest of my life. That’s not an easy thing to come to terms with! Sometimes, I still have difficulty accepting it. But the thing that I’m trying to do now is step up & speak out for other chronically ill young women & girls. Let me explain:

When I was first diagnosed, I frantically searched the internet for someone, anyone that was a public figure/social media person that had my illness–but also talked about their interests, their life, & so many other things. I simply couldn’t find it. There was no one out there like that. This sucked. I felt extremely alone & isolated. I felt that since no one was talking about their illness, that meant it was something to be ashamed of. And so, I hid my illness from as many people as I could.

It took a long time of self-reflection, tears, & a whole lot of other junk for me to decide that I was fed up with being repressed & silent! I decided that I wanted to become the girl that I wished I’d seen when I was first diagnosed. That’s the first reason why I’m here. I’ll be talking about chronic illness, how it affects my personal life & relationships, & try to help other chronically ill girls come to terms with their illnesses/disabilities.

However–I don’t want this “blog” to be all about my illness, because I am so, so, SO much more than that, you guys! I am a writer, I love skin care, I love music, I love warm weather, I stay up way too late watching movies, I am a proud member of the LGBT community, I am in a happy & loving relationship! I’m not here to just talk about my illness. I really hope that you healthy people come read my stuff, too–because this isn’t just about my illness. I want to show that while I am chronically ill, yes, I am much, MUCH more than a patient; a silent body on an exam table. I am fashionable, I am confident, I am passionate about so many things! And I want to share my thoughts with all of you.

Stay tuned for much, much more! I am very excited to introduce myself to all of you. I have so much love for those of you who’ve followed me through other social media platforms for the past two years (hello Tumblr & Instagram!) & I hope that you’ll follow my journey on here.

I’m ready to expand, ready to be very much me, very much SOF! & I hope you’ll join me, and find some amazing content on here that you can relate to.

Love Love Love!

Sof ❤

4 thoughts on “nice to meet you!

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